Videos from the Webinar for Rare Disease Day: Exploring the Prevalence of MPNs Worldwide

To commemorate Rare Disease Day, the Global MPN Scientific Foundation hosted a virtual webinar focused on the prevalence of Myeloproliferative Neoplasms (MPNs) worldwide, with specific insight into the Spanish context. The session featured Dr. Rafael Marcos Gragera, epidemiologist at the Catalan Institute of Oncology (Spain), and included scientific data.

The webinar has been divided into four key parts. You can change the language into English by going to “Configuration → Audio → English”. You can explore each section below:

Part 1 – Introduction and Criteria for Rare Diseases

In this opening segment, Dr. Gragera explains how rare diseases are defined in the context of public health and why MPNs fall into this category. He also reviews the importance of cancer registries and classification systems.
▶️ Watch Part 1: https://vimeo.com/1070968819/c690c5d322

Part 2 – Characteristics and Survival in MPNs

This section explores clinical characteristics, patient demographics, and survival rates for individuals diagnosed with MPNs, based on population data.
▶️ Watch Part 2: https://vimeo.com/1070968864/2eccbb36aa

Part 3 – Statistical Analysis and Classification of MPNs

Dr. Gragera presents the classification methods used in cancer epidemiology and provides insight into how different types of MPNs are statistically analyzed.
▶️ Watch Part 3: https://vimeo.com/1070968907/42f9870d2e

Part 4 – Current Data, Projections, and International Comparison

The final part offers updated epidemiological data, future projections, and a comparison of MPN statistics across various countries, shedding light on global trends and disparities.
▶️ Watch Part 4: https://vimeo.com/1070968948/9f960773d0

This webinar brought together expert insight and patient perspectives, contributing to a deeper understanding of MPNsas rare diseases. We thank everyone who participated and helped make this conversation meaningful.