Video | Roundtable with Essential Thrombocythemia (ET) Patients

Published on July 11, 2025

Special roundtable exclusively for patients and caregivers living with Essential Thrombocythemia (ET).

This session created a safe and supportive space for open dialogue. Participants shared their personal experiences, discussed the daily challenges of living with ET, and exchanged practical strategies to manage symptoms and improve quality of life.

It was a powerful and inspiring conversation that reminded us of the importance of patient connection in rare diseases.

Full video: https://vimeo.com/1099748006/2239e89c17?share=copy

Other news

Video I Nutrition for MPN: Supplements, Anti-Inflammatory Diets & Boosting Energy

July 8, 2025
On July 1st, the Global MPN Scientific Foundation hosted a special webinar focused on how nutrition can support people living with Myeloproliferative Neoplasms (MPNs). Led by Carla Not, a well-known registered dietitian specialized in clinical nutrition and hormonal health, the session offered science-based insights and practical strategies for managing inflammation, improving energy production, a

Video I Emotional Balance with Tapping. Wellbeing for MPN Patients

July 14, 2025
The Global MPN Scientific Foundation recently hosted a special wellbeing workshop focused on supporting the emotional health of people living with Myeloproliferative Neoplasms (MPNs).Led by Elena Mendoza, certified Emotional Freedom Techniques (EFT) Tapping facilitator and Director of Instituto Tapping, the session introduced participants to EFT, a simple, powerful tool to help manage stress, anxi